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Myalgic Encephalomyelits & Other Overlapping Conditions:
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SM1-001
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The Mental Health Movement: Persecution of Patients?
by Professor Malcolm Hooper
Preview Quotes
"In the UK, patients with myalgic encephalomyelitis (ME, also known as Chronic Fatigue Syndrome or CFS), particularly children, have suffered gross and barbaric abuse and persistent denigration as a consequence of the beliefs of certain psychiatrists who are attempting to control the national agenda for this complex and severe neuro-immunological disorder."
[p-4]
"These psychiatrists are shown to be clearly in breach of the first tenet of medicine --- first do no harm--- in that by their words and deeds they have wreaked havoc in the lives of ME/CFS patients and their families by their arrogant pursuit of a psychiatric construct of the disorder which ignores the abundant clinical and scientific evidence (widely presented in the international medical and scientific literature) of the organic nature of ME/CFS."
[p-4]
"There have been persistent and frequently covert attempts by these psychiatrists to subvert the international classification of this disorder, with destructive consequences for those affected."
[p-4]
"To the serious disadvantage of patients, these psychiatrists have propagated untruths and falsehoods about the disorder to the medical, legal, insurance and media communities, as well as to Government Ministers and to Members of Parliament, resulting in the withdrawl and erosion of both social and financial support."
[p-4]
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For professionally produced hardcopies
of this document please contact:
Malcolm Hooper
Emeritus Professor of Medicinal Chemistry
School Sciences
Fleming Building
Wharncliffe Street
University of Sunderland
SR2 3SI
UK
Production, postage and packing costs
are £5.00; any additional contribution
will be gratefully received.
Cheques should be made payable
to M Hopper.
Read the whole document here
Download it here in Word format*
Visit Prof Hooper's own webpages:
Overlapping Syndromes
Collected Articles
* Right-click on the download link
then select the "Save Target As"
option from the menu offered.
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SM1-002
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Engaging with Myalgic Encephalomyelitis (ME):
Towards Understanding, Diagnosis and Treatment"
by Professor Malcolm Hooper
Preview Quotes
"Thyroid Status - very commonly ME patients are described as biochemically euthyroid (normal) but clinically hypothyroid (excessive and disabling fatigue, low level of alertness, weight gain, dry skin and hair, emergence of autoimmune disorders, etc). This contradictory picture is usually based on measurement of blood levels of TSH (thyroid stimulating hormone) and T4 (thyroxine). However, the most important and potent thyroid hormone is T3 which is formed in the body from T4 by deiodination by a selenium-dependent enzyme. If this process is faulty then thyroid function will be dangerously compromised. Low levels of free, circulation thyroxine and raised receptor resistance can also contribute to a hypothyroid state. The complex factors involved with hypothyroidism have recently been recognised, Dayan, 2001, Shames and Shames, 2001. All these different steps need to be checked out before normal thyroid function is accepted in an ME Patient."
[p-56]
"Other more specialised endocrine tests are, the buspirone-prolactin test in which and exaggerated response occurs, Richardson, 2001, whilst the ACTH-cortisol response test often results in a blunted response, and there is no significant cortisol response to mild stress, Bruno, 2002. Many ME patients have reduced adrenal reserve and ultrasound scans often reveal reduced adrenalin mass."
[p-56]
"Bell, 1998, has studied the unstable nature of the cardiovascular response in ME patients. Very commonly there are significant and varied changes in blood presure that occur on changing position, from sitting to standing, or just prolonged standing. Blood presure and pulse rate measurements under varying conditions are often diagnostic. Tilt table testing provides a more comprehensive ans sophisticated assessment. Blood volumeis often very low both with regards to RBCs and plasma volume. Low levels of circulating vasopressin (anti-diuretic hormone, ADH) indicate a dysfunction of the posterior lobe of the hypothalamus."
[p-56]
"A significant proportion of ME patients develop (multiple) chemical sensitivities. The most common ones are to caffine, perfume, and alcohol but sometimes the condition can become very extensive and involve most volatile organic materials."
[p-57]
"Other members of the Newcastle Research Group include Byron Hyde, who with Jay Goldstein and Paul Levine co-edited the majour reference book on ME, 'The Clinical and Scientific Basis of Myalgic Encephalomyelitis-Chronic Fatigue Syndrome', 1992, dedicated to John Richardson. Any reading of this major text will demonstrate, beyond any peradventure, that ME is a major organic illness with widespread effects on all the major systems of the body."
[p-71]
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For professionally produced hardcopies
of this document please contact:
Malcolm Hooper
Emeritus Professor of Medicinal Chemistry
School Sciences
Fleming Building
Wharncliffe Street
University of Sunderland
SR2 3SI
UK
Production, postage and packing costs
for this second-printing [Jan 2004] edition
are £5.10; any additional contribution
will be gratefully received.
Cheques should be made payable
to M Hopper.
Visit Prof Hooper's own webpages:
Overlapping Syndromes
Collected Articles
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SM1-003
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What is Me? What is CFS?
Information for Clinicians and Lawyers
by Professor Malcolm Hooper, E.P. Marshall, and M.Williams
Preview Quotes
"ME / ICD-CFS is a serious, disabling and chronic organic (ie. physical not mental) disorder: 80% of patients do not get better. According to US statistics provided by the Centres for Disease Control (CDC), only 4% of patients had full remission (not recovery) at 24 months. International expert Daniel Peterson is on record as stating about ME / ICD-CFS:"
"In my experience, (it) is one of the most disabling diseases that I care for, far exceeding HIV disease except for the terminal stages."
[p-4]
"American researchers found that the quality of life is particularly and uniquely disrupted in ME /ICD-CFS and that all participants related profound and multiple losses, including loss of jobs, relationships, financial security, future plans, daily routines, hobbies, stamina and spontaneity. Activity was reduced to basic survival needs for some subjects. The researchers found that the extent of the losses experienced by sufferers was devastating, both in number and intensity."
[p-4]
"Australian researchers found that the patients with this disorder had more dysfunction than those with multiple sclerosis, and that in ME / ICD-CFS the degree of impairment is more extreme than in end-stage renal and heart disease, and that only terminally ill cancer and stroke patients was the sickness impact profile (SIP) greater than in ME / ICD-CFS."
[p-4/5]
"Of potential significance is the fact that American researchers have demonstrated that in ME / ICD-CFS, a particular pathway in the body which is affected by viruses can also be affected by chemicals."
[p-5]
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For professionally produced hardcopies
of this document please contact:
Malcolm Hooper
Emeritus Professor of Medicinal Chemistry
School Sciences
Fleming Building
Wharncliffe Street
University of Sunderland
SR2 3SI
UK
Production, postage and packing costs
are £3.00; any additional contribution
will be gratefully received.
Cheques should be made payable
to M Hopper.
Read the whole document here
Download it here in Word format*
Visit Prof Hooper's own webpages:
Overlapping Syndromes
Collected Articles
* Right-click on the download link
then select the "Save Target As"
option from the menu offered.
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SM1-004
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M.E.
Post-Viral Fatigue Symdrome: How to live with it
by Dr Anne Macintrye
Preview Quotes
"To have ME is to experience hell twice over, firstly through the devastaton of the disease itself, and secondly through the lack of diagnosis, information and support that most sufferers are still having to endure."
[p-1: Foreword]
"If you take a number of people with M.E. (not just 'chronic fatigue'), who have a condition causing a brain disturbance with disordered neurotransmitters, and excess cytokine production by activated white cells: an illness which makes many lose much of their lives - jobs, family, friends and sports; and illness with debilitating exhaustion, pain, and maliase - would you not expect those affected to show emotional disturbance some of the time?"
[p-66]
"Rachel Carlson's classic book Silent Spring, written back in 1962, was a chilling forecast of the price we may have to pay for tampering with the environment. Talking about the effect of DDT and other pesticides on living creatures and food chains, she said, 'It looks as if we will go on swallowing these chemicals whether we like it or not and their real effect may not be seen for another twenty of thiry years.'"
[p-202]
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Thorsons
An Imprint of HarperCollins Publishers
77-85 Fulham Palace Road
Hammersmith
London, UK
W6 8JB
ISBN: 0 7225 2624 5
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SM1-005
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Better Recovery From Viral Illness
by Dr Darrel Ho-Yen
Preview Quotes
"Recent medical research shows that PVFS does exist. The suggestion that this illness is "all in the mind" is just not acceptable. Over the last five years, there has been a massive increase in knowledge of this illness. Some of the recent discoveries have been due to the application of modern technology, others have been the result of workers in other areas of medicine applying their expertise to PVFS. Much of this new information has not been extensively communicated, and thus lay people (and many doctors) are not aware of its existence. One can say unequivocably that there is no reason to doubt the truth of many complaints in patients with PVFS."
[p-14]
"I do not believe that the earliest outbreak of PVFS was in 1934. I believe that PVFS has existed for as long as there have been viral infections - from the very start of man's existence."
[p-32]
"One criticism of modern medicine is that it is too specialised. Doctors become expert on a particular part of the body or particular illnesses. They appear to know more and more about less an less. Some feel that this approach has resulted in doctors being narrow-minded , even short sighted."
[p-217]
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Dodona Books
The Old Schoolhouse
Kirkhill
Inverness
IV5 7PE
Scotland, UK
ISBN: 0-951 1090-3-0
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SM1-006
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Recovering From M.E.
A Guide to Self-Empowerment
by William Collinge
Preview Quotes
"Obviously pathogens such as viruses and bacteria come from the environment around you. But the influence of the environment on your health also includes toxins and pollutants that have accumilated in your body and may affect your resistance to illness. For example, growing up downwind from a nuclear testing site in the 1950's, or in a farming community where agricultural chemicals had seeped into the water table, can have a definite impact on your resistance. And of course there are the petrochemicals and other substances in your current environment, some of which we have yet to discover, which may chronically disturb your immune system functioning."
[p-24]
"There is a wide range of emotional problems that may accompany ME, as is the case with many other chronic illnesses. However, ME is different from many other conditions in that the activity of the disease process itself affects brain chemistry, neurological functioning, and emotions directly. In this sense, much of the emotional difficulty could be called somato-psychic - that is, resulting from problems of the soma, or body, affecting the mind or psyche."
[p-38]
"The cancer self-help movement and psychological research with cancer have given rise to the concept of the "exceptional cancer patient." This is the person who actively attempts to defy the statistics or the prognosis. In my experience, there are exceptional ME patients as well. They take an active role in promoting their own recovery through self-help and lifestyle change. Rather than taking the attitude that their recovery depends on medical treatment alone, they become active partners with their doctors and do what they can on their own to promote healing."
[p-52/53]
"Perhaps this is a good time to reiterate the fact the ME is not a psychosomatic disease. "Psychosomatic" means the mind is the root cause of the symptoms in the body. If anything, ME is a "somato-psychic" disease. The events in the body - specifically the immune system - influence the brain, mind, and emotions."
[p-115]
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First published in the USA
under the title:
Recovering from Chronic Fatigue Syndrome
by The Body Press/Perigree Books,
The Putnam Publishing Group,
New York
First British Edition published 1994 by:
Souvenir Press Ltd
43 Great Russell Street
London, UK
WC1B 3PA
ISBN: 0 285 63173 X
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SM1-007
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M.E. [Chronic Fatigue Syndrome] and the Healer Within
by Nick Bamforth
Preview Quotes
"...I must stress that the first meditation in this book which establishes a connection to the Earth is the most important of all for someone who lives with ME. This is especially true of someone who lives in the city and who, until ME came along, used to lead a frenetic, stimulating existence. I recognize that, if you suffering from ME, it is likely that you have such an active mind and that stilling it through meditation will be very difficult for you. Please persevere and please start to become more and more aware of nature around you, even if this means seeking out a park in the middle of an urban landscape."
[p-55].
"And the main shaft of this gold, vibrant universal energy shoots downwards into your heart and, as it does so, it blazes forth into the whole upper part of your body through your arteries, cleansing you blood, your lymph system, surrounding your T-cells with a protective ray of healing energy, cleansing your lungs, kidneys and liver, bringing light and balance to your nerves and, as it flows through all your vital organs, all the dark spots within them, the viruses, whatever should not be there, are swept away with the light and down into the earth."
[p-70].
"For many people, a life-threatening disease presents the first opportunity to stand back from their lives and say: 'I am confronted with the possibility of dying. If I am really going to choose to live, what is it that I really want from this life ahead of me?' And the question itself is a release; it is an act of letting go of the need to hold on to all the superficial rubbish that has for so long drawn energy away from the the essence of our lives."
[p-156].
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First published in the UK in 1993
by Amethyst Books
Lime Tree house
Swalcliffe, Banbury
Oxfordshire OX15 5EH
Reprinted 1995
Printed by The Guernsey Press
Distributed in the UK by:
Gateway Books
Tel:01225-835127
ISBN: 0-944256-25-2
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SM1-008
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ME
The New Plague
by Jane Colby
Preview Quotes
"In 1948, a polio-type illness in New York State prompted scientists to use tissue culture to grow the virus. But even with their new technology, what grew looked to them like a new virus. They called this virus "Coxsackie after the small town up the Hudson River where it was found. And they called the disease atypical polio because its symptoms identified it as a kind of polio, despite the virus being apparently different. But this kind of polio, atypical polio, has since been renamed ME, and even more recently Chronic Fatigue Syndrome, or Post Viral Fatigue Syndrome."
[p-23].
"The technology we have today shows clearly that what was then thought to be a new virus was simply one of a family of 72 members - the enteroviruses, or bowel viruses. Polio iteself also belongs to that family."
[p-23].
"In 1988 in the Journal of Hospital Infection, Dr Elizabeth Dowsett pointed out that all the enteroviruses share the physical, chemical and epidemiological characteristics of polio viruses. Being so closely related, they compete for the same receptors in the body."
[p-23].
"A virus has to get into a cell through a specific receptor on the wall of that cell. This is an area of the cell wall to which a virus can bond chemically, rather like a Yale lock and key mechanism."
[p-23].
"Enteroviruses have an affinity for neurological cells. The have what is called a 'tissue affinity' and they also have this affinity for muscle, pancreatic and other cells. And, since they can all use the same receptors, whichever one gets there first excludes the others."
[p-23].
"When you have a competition and you remove one of the competitors, it is not hard to guess what is going to happen to the rest."
[p-23].
"What happened in the case of the enteroviruses was that as vaccination allievated the scourge of polio, there were world-wide epidemics of the other enteroviruses, which found the field clear for them. Epidemiology (the study of the behaviour of diseases in the comminity) reveals synchronisation of ME epidemics with these enterovirus epidemics, the huge 1984-1989 pandemic being a good example."
[p-23].
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First published in 1996
Reprinted 1996
By:
First and Best in Education Ltd
34 Nene Valley Business Park
Oundle
Peterborough
PE8 4HL
Printed and bound by Great Britain
by the Ipswich Book Company Ltd
Nacton Road
Ipswich
IP3 9QR
ISBN: 1-8608-3215-6
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