Hello
And I Sang In My Chains Like the Sea
Below is a letter indicative of happier doctor/patient times when there seemed to be healthy open-mindedness with regard to my health problems. For me there was also a sustaining sense of being involved in a two-way process of learning and discovery about these modern plagues of M.E. and MCS. This was very important for me because it helped mitigate not only modern medicines complete impotence with regard to making any real positive impact on either disease [difficult enough to deal with when you are often suffering to an extreme degree], but also its substantial and ever present potential for doing great, permanent or possibly even lethal harm to its patient due to its almost total lack of understanding of these 'new plague' illnesss - both as individual medical entities in their own right, but particularly in their complex and synergystic interaction when present within a single, unfortunate individual.
Tight-Rope Walking in the Dark
Alas, that 'partnership' of learning was unilaterally ended by my GP in the early spring of 2002 without the slightest consultation with me about it - nor even the merest mention of the possibility of it. Shameful, shameful arrogance. Consequently, I now have the worst of all worlds medically speaking. And, when you suffer in a severe way from ME/MCS that is rather bleak, lonely and dangerous place to be. Apart from 'basic' medical 'care' - you are, to all meaningful extents and puproses left to stagger accross a largely unexplored medical high-wire on your own with no saftey net of experise waiting reassuringly below to catch you should your health suddenly plummet beyond bearing.
Russian Roulette with your Health
So, my fight to prevent further deterioration in my condition and, hopefully, at some point regain my health again is now a very difficult, dangerous and solitary one. Refusing to accept either the kind of living-death imposed on me by my illnesses, or settle for the shameful lot allocated to me by so-called 'modern' medical practice, I have long since opted, of sheer necessity, to become my own guinea pig - where, unfortunately, every health experiment, being a complete unknown, becomes a potential variation of Russian-Roulette.
Thank you for your interest.
Namaste
Yours Sincerely
Gordon D McHendry
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