Hi
"The past 18 months have been quite extraordinary for me in terms of ill health. On the dental front several hidden root-canal infections have made M.E. life almost impossibly difficult. And then an ever deteriorating MCS (Multiple Chemical Sensitivities) condition, (which has seen me having to sleep and largely live in my garden shed all the year round for the past 4 years now) deprived me of my bedding some 6 months ago so that I now have to sleep on bare wood, with no mattress, no pillows, and no duvets or blankets. Multiple layers of clothes, one nylon mat, and one cotton sheet, being all I now have to keep myself from freezing to death (with the aid of a small electric bar fire which makes me very ill whenever I have to use it)."
"These quite extraordinary circumstances have conspired, in their totality, to make development of Satori-5 temporarily impossible. However, I hope to be able to turn my free available energies to making Satori-5 a fully functioning reality soon now. Part of that reality will be my own full story of living with Severe M.E/MCS, particularly the last 4 incredibly difficult years of living in a garden shed with these very disabling conditions, (which has almost proved fatal on several occasions so far), in the face of repeated refusal's from Social Services, Benefit Agencies, GP's, Consultants, Housing Department Officials, etc, etc, to all my many desperate requests for some kind of help."
"I intend to illustrate the whole shocking scandal of my situation these past 4 long, and very difficult, years, right here at Satori-5, with photographs, research and information papers, actual letters, both sent and received to and from a whole range of official bodies, and written testimonies of various 3rd party wittnesses. At the time of writing I am still very much in it all and still living like some kind of beast in a shed (see "The "Unbelievable" Crisis" section photographs)."
"I hate the idea of it but I feel I have no alternative now but to throw the whole story to the national press in the hope that something will be done about it. Not just for myself but also for the many others out there who are suffering terribly from M.E/MCS too. To all of you out there that suffer with me I say this: The people who run or provide the services we all depend upon the most have been ignoring us for far too long. That has to stop. It can and it will stop. But we have to make our personal situations visible to a wider section of society than just our families, neighbours, and friends. We have to stand up and demand to be counted."
"If you have a similar M.E./MCS story to tell then please e-mail me with it (Webmaster link at the bottom of the page). I would love to hear from you."
"We have to fight the prevailing attitudes of ignorance and arrogance together. I hope to make Satori-5 a platform for that. And I hope that you will help me to do that by contributing your own story, your own pain, your own despair, your own hopes. If you suffer as I do then even though we have never met I am already your friend. We are already joined by our common suffering at a deep level."
"Contact me: Even if you are not affected directly I hope you will call back from time to time to check on progress. Your very interest is of great value."
I wrote the above in March 2002 and a few things have changed since then - so - a little updating here is probably in order. After swapping from one to the other a few times I have finally decided to drop the term "Multiple Chemcial Sensitivities" in favour of "Multiple Chemical Sensitivity". Both are used widely but, having test driven them both I prefer the latter.
The stated intention to "illustrate the whole shocking scandal" has now been largely [but still not completely] acheived, including two short videos. Getting this far has demanded a quite exceptional and sustained physical, emotional, and mental effort under some quite unbelievable circumstances - and there is still a very hard way to go yet. Meantime, all said information is available via the previous "FPE Menu". Another major change is that Satori-5 has finally been discovered by some of the top Internet Search-Engines.
Thank you for listening
Namaste
Yours Sincerely
Gordon D McHendry
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